An editorial written by Alex Sweeney and Joel Goodman
When I first jumped on a virtual call with Alex Sweeney, I was immediately struck by his purple suit, crisp white shirt, black tie, and the stylish pocket square peeking from his jacket. Our meeting’s goal was simple: gauge his interest in writing a story as a member of VIDA’s community. Beyond that, I wasn’t sure what to expect. However, as our conversation unfolded, it became clear that Alex had a unique and powerful perspective on life to share. He opened up about his experiences as an Autistic individual navigating society, and together we embarked on a working journey to understanding each other.
As a member of VIDA’s Support Centre, my conversation with Alex illuminated a crucial truth: a genuine understanding of Autism requires more than just textbook knowledge, it requires lived experiences. We agreed to meet bi-weekly, setting up simple assignments and goals to co-author something meaningful. What started as an article quickly became the foundation for friendship and learning.
To gain further insights, I reached out to Dr. Isabel Smith, a clinical psychologist and leading researcher in Autism at Dalhousie University's Developmental Pediatrics Division. With over 40 years of experience, Dr. Smith has carried out studies with hundreds of individuals on the spectrum and their families, and knows many who have grown into successful, independent adults.
“One of the most fascinating aspects of my research has been seeing how well so many of these individuals are doing as adults,” says Dr. Smith.
“There’s a common misconception that Autism is only about severe challenges or behavioural difficulties. While those aspects exist, they do not define the entire spectrum.” - Dr. Isabel Smith
She noted that many Autistic adults integrate into society seamlessly, sometimes without disclosing their diagnosis. While some traits remain visible to those familiar with Autism, others develop adaptability, making their diagnosis virtually undetectable.
Alex provided personal context, explaining that many Autistic individuals engage in “masking” to fit societal expectations. “Many of us want to make others happy, to fit in, or not rock the boat. But masking can be exhausting and, if done too much, lead to mental exhaustion and burnout.”
Over the years, support for Autism has improved significantly. Decades ago, diagnoses were rare, and resources were minimal. Today, early intervention, specialized education plans, and increased societal awareness have opened more doors for Autistic individuals, allowing them to develop life skills and thrive in education, employment, and independent living.
Dr. Smith emphasized that while Autism does not “go away,” individuals learn strategies to navigate the world and build flexibility. “For many people with Autism, familiarity and consistency are key. But adaptability is like a muscle that can be strengthened over time.”
In 2024, the Canadian Federal Government released an Autism Guidance Framework and Strategy, highlighting the need for better housing, employment, and long-term care support. Housing is a particularly pressing issue, as young adults with Autism often face difficulties securing stable living situations, especially if they struggle with employment. That’s where my company, VIDA, swings into action, acknowledging what people in respective communities need to survive and thrive.
Employment is another challenge, though many Autistic individuals possess exceptional skills, including heightened attention to detail, deep focus, and problem-solving abilities. Industries like technology, coding, and research have seen an increasing number of Autistic professionals finding success. However, broader workplace inclusivity and flexibility still have room for improvement.
"[...] Society has rigid expectations for behaviour, and when someone doesn’t fit that mould, they can often be misunderstood." - Dr. Isabel Smith
Dr. Smith underscored the importance of mutual understanding: “Social and communication differences are a two-way street. It’s not just that Autistic individuals experience difficulty relating to us; we also struggle to relate to them. Society has rigid expectations for behaviour, and when someone doesn’t fit that mould, they can often be misunderstood.”
Alex believes that better education around Autism can help bridge that gap. “If people understood Autism better, we’d communicate more effectively and build stronger relationships,” he says.
Alex's Perspective: Living with Autism in VIDA's Community
If I mention Autism, what’s the first thing that comes to mind? For many, it’s Rain Man or Sheldon Cooper from The Big Bang Theory if you’re a millennial in your 30s. But what is life like for me as an Autistic man living in one of Halifax’s VIDA communities? Allow me to share my experience.
Autism, or Autism Spectrum Disorder (ASD), is a developmental condition that fundamentally shapes how I perceive the world. My brain functions differently from “typical” (or neurotypical). For me, this means socializing can be a challenge. I don’t have a lot of close friendships because I struggle with social cues, whether from being oblivious or because neurotypical communication often lacks direct sincerity. Sarcasm, for example, isn’t always apparent to me; I have to pay extra attention to facial expressions and vocal intonations.
Routine is important to me, though I have moments of spontaneity. I might take a bus downtown to explore Halifax or shop in Bayer’s Lake on my days off. But I balance that with a structured work schedule at Costco and helping clean two VIDA buildings.
There’s a misconception that Autistic people are either emotionless geniuses with no social life or individuals who struggle with essential communication. Neither of these stereotypes reflects my reality. I earned a bachelor’s degree from Mount Saint Vincent University, work full-time, and actively contribute to my community. Misunderstandings happen, but they’re minor, and I always strive to clarify myself when needed.
Moving to Fairview with my sister was an eye-opening experience. Historically, the neighbourhood had crime issues, but VIDA’s presence has brought noticeable positive change. The community is safer, and while COVID-19 disrupted many social events, I appreciate VIDA’s efforts to build connections among residents.
"Misunderstandings are inevitable, but with patience and empathy, we can bridge the gap between our experiences and build a stronger, more inclusive, community." - Alex Sweeney
So, how can we foster better connections? It starts with education, by learning about different neurotypes and disabilities. But beyond that, a warm and welcoming attitude goes a long way. You never know what challenges your neighbours might be facing. Most importantly, we should allow for grace. Misunderstandings are inevitable, but with patience and empathy, we can bridge the gap between our experiences and build a stronger, more inclusive, community.
Embracing Neurodiversity for a Better Future
Alex’s willingness to share his perspective underscores the power of community. As society moves toward greater acceptance, creating spaces that remove barriers and ensure all individuals, regardless of their neurological makeup, are valued and supported is crucial.
We all have unique characteristics that contribute to the success of our communities. Recognizing and celebrating those differences is the key to a more inclusive future. By listening, learning, and connecting, we can build a society where everyone feels a sense of belonging and sees new opportunities to thrive.
#AutismAwareness #LightItUpBlue #AdvancingNeurodiversity #CreatingCommunity